Consumer Involvement
Consumer Representatives play an integral role in the governance, planning and delivery of research across OPTIMAL. Their involvement ensures that research priorities and outcomes reflect the needs and experiences of patients, families and the broader community.
How we are involving consumers in OPTIMAL
Consult
Consumers provide feedback on materials and ethical concerns for new projects.
Involve
As members of working groups, project teams, and the Stakeholder Advisory Committee, consumer representatives are directly involved in priority setting activities of the research.
Collaborate
Consumers are invited to participate in conference or interview panels and join future research as partner investigators.
Lead
Consumers in OPTIMAL:
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Co-host events
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Co-publish research
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Co-develop patient-facing resources
Consumer Representatives
MS PENNY LONG
Kawasaki Disease Foundation Australia
Kawasaki Disease Working Group (2024-5)
MS CAITLIN RUSSO
Kawasaki Disease Foundation Australia
Kawasaki Disease Working Group
MS SUSAN WHITE
Myasthenia Alliance
Myasthenia Gravis Working Group, Stakeholder Advisory Committee
MR CAMERON MATES
Kawasaki Disease Foundation Australia
Kawasaki Disease Working Group
MS VERONICA RASZEJA
Leukaemia Foundation
Stakeholder Advisory Committee
MS NATALIE WINDLE
Myasthenia Alliance
Myasthenia Gravis Working Group
MS SHIRLEY MATES
Kawasaki Disease Foundation Australia
Kawasaki Disease Working Group
MS JOCE TURNER
Kawasaki Disease Foundation Australia
Stakeholder Advisory Committee
